Not too good today

As the title suggests I am not too good today. Yesterday, Saturday, was not a particularly good day for me, woke up around 2:30 and couldn't sleep after that so got up at 3. Boy does that make a l-o-n-g day of it. Managed to get through the day but in the evening I felt so tired I just about managed to read to my eldest boy and promptly fell asleep after finishing. I should have taken this as a sign that things were not right. Went to have a bath a bit later on as this helps with some of my problems, such as wiping your backside,( even with so called soft toilet paper the number of times I have over the last 6 months), makes you so sore it is like I would imagine using sandpaper would be. The bath helps with this feeling, but I fell asleep in the bath and woke up bloody freezing cold. Went to bed around 21:30 and fell asleep straight away. When I woke this morning I felt like I was coming down with the flu, not surprising as my eldest has been off school with a badly sore and swollen throat, the doc says it isn't tonsillitis but I wonder as the tonsils seem to be twice the size I would expect. Anyway, first trip to the toilet of the day was very urgent and had a lot of bloody mucus, that is to say both mucus with blood in it and 'bloody mucus!'. I have not had this much for a while so I may have to be increasing my prednisilone again, back up to 40mg a day. Just when I was doing so well and had got down to 15mg a day.

Anyway, my feeling on the ileostomy operation have not changed a lot, only thing I am wondering about is perhaps I should have the whole lot out and not bother with a temporary solution. If I can't get off the steroids now, what will happen when I have had the op and am using the bag instead? Something else to ask the surgeon and consultant I suppose.

In case you were wondering, I have not been dreaming about being chased by giant stomas yet, that is something straight out of a Monty Python's Flying Circus! I am sure only they could do it justice!