After a few good days I was thinking that life was going real good. On Friday I managed to take my boys to the local 'soft play' centre, Space Island, (I recommend it to anyone on the Island looking for something to do when it is wet), and in the afternoon I took my eldest boy fishing, (he fished I helped). We went to the lifeboat pier and he caught some wrasse and was so happy it made my week. Then Saturday I said to my wife that I had almost forgotten about the bag and everything. So things were looking good. The hernia belt arrived on Friday so I was going to call the stoma team on Monday to arrange for the hole to be marked so I can start wearing the belt and get back to work. Then Sunday evening I get a belly ache. I went to bed for a bit but it got worse so I got up. It got worse again so went back to bed, mostly just to be near my wife in case it got any worse. It did so we called the out of hours doc. We are lucky in that we have our own version of NHS Direct here, we used NHS Direct before for my youngest and they had no clue about how the Island is in the middle of the Christmas holiday and they assumed that cos we live 13 miles from the nearest / only hospital we can get there in 10 minutes or so. Not the case. Trust me.
Anyway, when I went through my history with the person on the phone they said that I needed an ambulance to take me to A & E straight away. The pain is increasing all the time now so I did not argue. So I wait for the ambulance to arrive which it duly did. We called our best friend to see if she could look after the kids for us, (Lu we love you!), she arrived just before the ambulance so Ruth could follow the ambulance to hospital in our car. I get started on gas and air in the ambulance, apart from making me feel drunk it did nothing for the pain. I then get 2 shots of morphine which did dull it a bit but not enough. This is the first time I have been in an ambulance, I wonder if they all rattle that much?
I get to the hospital and get wheeled straight in. This is the fastest I have ever got to see a doctor. Normally you go and get seen by a nurse who decides if you need to see another nurse and then a doc. This time I saw a fantastic nurse and 2 brilliant doctors who poke and prod and give me some pain killers that don't work.
I then end up on the ward that I was on after the operation, 7 weeks ago! As well as the pain my stoma has stopped putting out anything at all. The two things are linked here, no output and pain, one is causing the other I think to myself and it must be a blockage, something I have eaten.
To cut a very long story not very short, the stoma started working sometime on Monday. I thought it had hurt the night before, little did I know how much it was going to hurt when it started to work again. Two years ago I had gall stone problems and had my gall bladder removed. The pain then was not as bad as the pain when the stoma started to work again. I thought this was not possible! It turns out that part of my small bowel had suffered from a kind of paralysis but only part of it, meaning that where the rest was working OK it meant that everything jammed up. This was probably due to a salt imbalance so I now have to be more aware about how much salt I am eating. Most of you are trying to cut down I expect. People with ileostomies have to eat more as we don't absorb enough from our food. I thought I was eating enough but apparently not!
So I got out on Wednesday, another 3 days wasted. Although I did get some more studying for my OU degree done on Tuesday, not really a lot to say about Monday other than I was in so much pain I DO NOT WANT A REPEAT OF THAT UNDER ANY CIRCUMSTANCES!!!
So, back home and noticing every twinge and grumble and hoping that each twinge is just that, not a precursor to anything more.
So, that is it for now, going to empty me bag and go to bed now, it's late and I have had enough.
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2 comments:
Mark, know of you from anoter forum (I am Samka), cant lo on tere at te present as you can see from te typin tat im sufferin from computer problems - misses letters out one of wic is in my forum password, readin te posts but cant reply on tere!
lad to ear youre recoverin from your ellis weekend. I know pretty muc ow you felt because ive been in 3 times since october wit a paralysed intestine - aony doesnt come close to describin te pain does it? I saw you asked on te oter site if anyone else ad suffered a similar tin. If teres anytin i can elp wit, sout me. As to salt balance, i take 3 -4 sacets of dioralyte daily, it replaces not just lost salt but te oter minerals tat we all lose wen were not absorbin properly and losin more fluid tan most people, potasium levels suffer wen you produce a lot of fluid and dont absorb properly and tat can leave you feelin fairly rubbis too. You can et dioralyte on prescription from your doctor. I cant eat fatty foods (makes everytin worse) so crisps are out so i add a bit of salt wen cookin and more to every meal wen it ets to te table.
ope youre feelin muc better soon
take care,
samka
Hi Sam
Thanks for the comment, I was sorry to hear that you have had this experience 3 times, hope you get a break from it now. I agree about 'agony doesnt come close to describing the pain does it?', (I filled in the missing letters!), you got that right. I had my gall bladder removed 2 years ago following horrendous pain. This paralysed intestine was worse than that....
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